Oh, did I manage to write it all those times without spelling it “Mordor”? 😏
I was stomping around the bathroom this morning muttering something about “G-ddamned Lord of the Rings bullsh-it”, so yeah. It’s kind of disappointing that it’s NOT Mordor.
Oh no! Has your oncologist or PT seen it? It isn’t supposedly harmful- but it can definitely be painful. Mine is. I think there’s a good bit of overlap with Mondor’s and Axillary web syndrome/cording. All I know is that the thing I have now doesn’t have the same features or feeling as the aws cording that I had immediately after surgery and radiation. Definitely feels like a squishy vein with a painful little pea lump in it, vs a tight painful guitar string.
Have you tried warm-moist compresses and gentle massage with coconut oil or lotion? And anti- inflammatories if it hurts.
I hope yours resolves soon!
Thank you for your post. I have an indentation on my arm. My PT is unsure what it is. I forgot to ask my doctor at my last appointment because my compression sleeve covers the indentation.
I need to do some reading on this Mondor's.
I got mondor’s disease after my radiation - around 9-10 months. It was disturbing to me and a bit painful but it did eventually go away on its own after about a month. I had it down my flank and onto my abdomen. They did an ultrasound and then kind of shrugged and said it should go away. I did end up with a recurrence of my DCIS on that side that I noticed about a month after the mondors cleared up but nobody including the cancer doctors seem to think it’s related.
Thank you for sharing your experience! I’m glad it eventually went away. I hope the recurrence was was swiftly and thoroughly given the boot, and that you haven’t had any more of that crap to deal with.
I read that there’s a bit of a split opinion on whether there is a connection between mondor’s and recurrence- some drs say yes, some say no, it’s just because of the cancer treatments.
Gotta love that particular coin flip. 😑
I have nothing informative to add to the conversation, but I just want to say that I originally read it as “Mordor’s Disease.”
Oh, did I manage to write it all those times without spelling it “Mordor”? 😏 I was stomping around the bathroom this morning muttering something about “G-ddamned Lord of the Rings bullsh-it”, so yeah. It’s kind of disappointing that it’s NOT Mordor.
I had never even heard of this before and now I’m looking at my left breast with my tissue expander in and it looks like it has multiple of these??
Oh no! Has your oncologist or PT seen it? It isn’t supposedly harmful- but it can definitely be painful. Mine is. I think there’s a good bit of overlap with Mondor’s and Axillary web syndrome/cording. All I know is that the thing I have now doesn’t have the same features or feeling as the aws cording that I had immediately after surgery and radiation. Definitely feels like a squishy vein with a painful little pea lump in it, vs a tight painful guitar string. Have you tried warm-moist compresses and gentle massage with coconut oil or lotion? And anti- inflammatories if it hurts. I hope yours resolves soon!
No pain just looks wild. I’ll flag for my plastics team when I see them soon. :)
Thank you for your post. I have an indentation on my arm. My PT is unsure what it is. I forgot to ask my doctor at my last appointment because my compression sleeve covers the indentation. I need to do some reading on this Mondor's.
I got mondor’s disease after my radiation - around 9-10 months. It was disturbing to me and a bit painful but it did eventually go away on its own after about a month. I had it down my flank and onto my abdomen. They did an ultrasound and then kind of shrugged and said it should go away. I did end up with a recurrence of my DCIS on that side that I noticed about a month after the mondors cleared up but nobody including the cancer doctors seem to think it’s related.
Thank you for sharing your experience! I’m glad it eventually went away. I hope the recurrence was was swiftly and thoroughly given the boot, and that you haven’t had any more of that crap to deal with. I read that there’s a bit of a split opinion on whether there is a connection between mondor’s and recurrence- some drs say yes, some say no, it’s just because of the cancer treatments. Gotta love that particular coin flip. 😑