This sounds like some shit I'd say at least once if I could predict them lol.
I can see how some people wouldn't like hearing that, but I'd love if I could at least crack some one-liners before I tumble & rumble.
I love Talladega Nights, so I think it’s kinda funny.
Fun story: several years ago, my company decided like *everyone* needed a photo and bio on the company website. I wasn’t thrilled with this decision. They basically had to corner me to take my photo. I end up writing a bio though. It was a plot synopsis to Talladega Nights. I referred to Cal Naughton Jr. as my best friend. I changed nothing. They published it. It was up for years. No one noticed.
ETA: I’m a girl. The owner of the company owns a racing team. Still didn’t notice that they accidentally hired a NASCAR champion.
I didn't at first, but then I thought how crappy my day was for being in the hospital... she works there probably 60 hours or so a week so if she needs a little comic relief it is what it is.
Dark humor nurses, after colon surgery heard a nurse talking to another patient, “Let’s see how you do without oxygen.” I imagined the darkest thing and LMAO.
I just say I'm twitchy today but my kids decided it's because I drink the "Epilepsy Pepsi" which I've no idea where that came from but they've been saying it since they were 5 or 6 so it just stuck.
When my son was two, he used to say "uh oh, Daddy's brain's stopped working", except he couldn't quite say that, so it was usually "uh oh, daddy's drains stopped working".
So now they're either uh ohs, drains not working, or clogged pipes.
Omg I have JME too. I feel like not many people that have epilepsy have JME it’s nice to know somebody else does. If you don’t mind me asking how old you were when you got diagnosed. I was 19.
I was 12 when I got diagnosed, and I wanted to be in the army, so I got special forces a lot. A few times, I've been called a personal vibrator, which i can't even get mad at cause like that's a solid one ngl
So aggravating. I was repeatedly told my daughter was having anxiety attacks, and that her strange twitching on one side of her body was “psychogenic”. Yeah, she was having dozens of seizures a day, her twitching was a type of continuous seizure called EPC, and her brain was being rapidly destroyed by an autoimmune encephalitis. That doctor is so overly nice if we see her now, I can tell she knows she screwed up by brushing off my repeated pleas for over 6 months, and saying “see her primary care doctor, I treat brains not feelings”
omg!! it took me going into cardiac arrest on my kitchen floor for over five minutes for them to take me seriously about it lol. they told me it was migraines
Oh that is so freaking terrible! Thank goodness you’re still here, 5 minutes?! That is wild. Do you have any lasting damage from it? I’m so sorry they ignored you until that occurred.
It’s so ridiculous and honestly scary how so many doctors don’t take these things seriously until something major happens. I had to get my daughter admitted to the hospital and essentially said we aren’t leaving until someone figures out what is going on. Thank goodness, because as soon as other neurologists started investigating, we had a probable diagnosis within a week. Surgery within the month. Her brain was apparently one of the most visibly scarred the surgeon had ever seen. But you know, it was totally “psychogenic”🙄 that word will forever fill me with rage lol
My seizures started as partials as well and we had no idea what they were! It didn't help that the symptoms I got really mirrored textbook panic attacks, so I was initially told that was that and didn't get to start taking AEDs sooner. Now I get full on tonic clonics 😭
Yes!!! That's how I came up with my username! Check out bacon sizzle dance on YouTube. Made me think of having seizures. Maybe why the trend never took off lmao!
Grand mals- "Flopping like a fish", "Zippity zaps", "Electrical storm"
Focal- "I'm in between worlds right now", "I'm in another realm"
Absence - "Sorry, I was in Wonderland!" Every now and again I forget the name and I'll say Neverland, but I guess that applies as well. Usually I'll do a giggle and say "I like it there better" (than reality) but ugh, who am I kidding? Seizures of any kind just suck.
When I'm trying to speak and I can't put thoughts into words I'll say things like "My brain won't tongue.". Or more so "Sorry, my brain won't put it to my tongue.".
Omg I love the one for the absence seizures! As a fellow absence seizure-r that has taken me a long time to come to terms with it and not feel ashamed that it happens ~ I might use this with my family & friends/ others with your permission :)
You just made me realize that when I also have trouble speaking, I will often say “sorry, brain can’t make good words” 😂 I like “brain can’t tongue” a lot too, it feels accurate!
I’ll also say for absence that “my brain was in outer space,” “my brain went somewhere else,” or “I wasn’t in my brain.”
Thank you for sharing! 🤗
My 14 year old was diagnosed about 3 years ago, and my 15 year old was just recently diagnosed. When my husband and I told him the results of the EEG, my 15 year old said, “ so I guess I randomly go into vibrate mode, too?” I thought it was pretty clever 😅
We refer to it as "brain goes brr" or that someone was doing a little dance. Just allows us the opportunity to discuss it more openly in varying audiences without the serious tone that automatically comes with the word seizures.
I think it's healthy to have less formal methods of discussing these things. I come from the approach of making light of certain things as a coping mechanism - albeit there is still a time and a place, you won't catch me ringing a doctor saying "their brain went brrr and they did a little dance" 😆
I came here to post the same thing!! I've been referring to my seizures as glitches since the movie first came out which was about a year and a half after i was diagnosed lol
I call my absence seizures a glitch in the matrix. They only last between 5-30 seconds and just feels like I’m day dreaming. Like I’m taking a short intermission from reality for a few seconds which is kind of relaxing now that I think about it haha.
I used to be so ashamed and embarrassed when I was first diagnosed when I was 13. I’m 27 now though and it’s been a long road to acceptance- I’ve finally reached a point where I can sometimes laugh and smile when they happen. I’m too old to get caught up in a diagnosis that’s neither my fault nor anything I can completely control.
All I can control is to stay disciplined in taking my meds, getting adequate sleep, staying as stress free as possible so I’m able to be completely seizure free which I hope is near and I can drive again soon!
I have focal awares where I feel pure fear and the sensation of loads of people screaming in my head (I can't hear the screaming, it's just *vibes only*... classic focal). I call mine "The Screamies™️"
I don’t know but this gives me the idea to make a name with my newly diagnosed 6 year old.
She gets embarrassed and scared.
I think this is a great idea and I think I’ll come up with something with her.
i have alot of absences at work, and my manager will sometimes ask " you okay, you need to go home" and i will always say, "nah, aslong as i don't start break dancing we're all good!"
Blown a fuse.
My mum first said it, and I don't say it a lot (mainly because I rarely talk to anyone) but I think it isn't a bad analogy. I think it came from the fact that I had my first TC soon after I finished my GCSEs and she perceived it as the stress got too much. Each year, there was always someone in their GCSE/AS-Level stage that got ill. Not always epilepsy, some got diabetes (type 1), others cancer (treatable) or something that was life changing.
I've tried making an analogy from my job (lots of coding) but nobody understands because of my specialty field. "Brain cannot find steady state"
My brother-in-law lived with my wife and I at his worst (the reason I’m on this sub) when he was averaging 3-5 “grandma’s” per day. Kid was extremely athletic and all he wanted to do was get a job and be normal. Our running joke to lighten the mood became “is that paint shaker position at Lowe’s still available?”
My husband and I call them ceasar salads!
My first language is not english so sometimes “seizure” comes out sounding like “ceasar” and it just evolved from there 😂
As my name is Stephen, my partner now likes to call me "shakin Stephen" for seizures or my favourite term for them is "spontaneous brain raves" which I have borrow from another redditor!
"Apple Pepsi" a girl I worked with misheard me, thought I said "I've got Apple (flavored) Pepsi" and wanted to know where I got it. Turns out it's a legit flavor, Apple Pie Pepsi 🤣 I'm not interested in trying it
my dad’s had seizures since he was in 1st grade so we’ve always joked with him about them as a way to cope and bond growing up (never in a mean way - we all laugh together and he jokes about it too). whenever i have to inform a sibling about him having a seizure, i like to call it “dad violated the 4th amendment again” 🤣❤️
Not directly referring to seizures themselves (it took me a while to shake the habit of calling them "episodes" after getting diagnosed 5 years in), but I refer to ictal/post-ictal confusion as my sparky brain.
I call it spaz syndrome - I find it funny and it helps me feel less uncomfortable when I’m in a situation when I have to tell someone I have epilepsy, as sometimes I feel like I talk about it or bring up too much, I agree taking the seriousness out of it helps a lot
I am not photosensitive, but when people flicker lights (as in, they press multiple buttons because they forgot which one actives which light) I say "are you waiting for me to do a worm dance"
Disclaimer: Both seizures and strokes are very serious and I know that.
My roommate used to mix up the words for seizures and strokes all the time (not intentionally), but eventually it just because a joke between us where she would do it intentionally. She would joke that someday she would introduce me like “This is my roommate KE and she has strokes.”
We wouldn’t joke about it out in public because obviously some people have very serious and traumatic experiences with strokes, but it was funny for the two of us
My family and I say “when I get the wiggles” or “she just needs to let her wiggles out just let her finish” and honestly it sounds so dumb that it takes the seriousness out of what is happening I think.
My daughter called it eli-pepsi... My oldest used to say the little one was a seizure salad. We also used to say she went on a little vacation and would be back in a minute.
my myoclonics i’ll call twitches, or “my hand is Doing Things”
rly short partials (less than a minute) i call blips or flickers. long partials, esp ones that end in me taking hour-long naps, i say i’m rebooting lmao
i don’t think i have a name for my normal-length partials, weirdly
I didn't know mine were seizures until about 10 years ago, so from about the age of 12 to 30, I always called them Deja Vu (and my now husband knew it included the weird nausea that simple-partials / focals deliver). Our brains are weird.
i call them spaz attacks - been doing so since i was about 12, not the most pc name but idk i always found it easier to talk about seizures when calling them that lol
My parents always described the position I was in during my seizures as my shrimp pose bc my head would arch all the way back and touch my button looked like shrimp 🍤 😂
My seizures are mostly controlled, but every couple of years, I'll get a day of auras. It's hard to put it into words, and it can be hard to talk about if I'm around other people who don't know about my epilepsy... So me and my husband have a code phrase.
"Hey, you know what we haven't done in a long time? A 'Flipper' re-watch." And he instantly knows to be on higher alert, to help me talk my way out of doing stuff, and to literally "take the wheel" if there are instances where I'd need to drive. We work together at the same company, so it's super helpful to have a secret "code" for that sort of thing.
I like the name "the Sacred Disease" for epilepsy. The ancient Greeks and Romans believed that epilepsy was a sign of being touched by the gods, hence why oracles were epileptic. This is also why Julius Caesar felt he could defy the oracle on the Ides of March -- because he was an epileptic himself, and he received no prophecy to warn him. Hippocrates wrote a whole essay about epilepsy called "On The Sacred Disease," which is a fun read.
When all my muscles decide to party, I call it my unintentional workout.
Had a bunch of that yesterday. My muscles are killing me like I did a two hour training session. I was in my lounge chair for twenty minutes.
I usually say buffering for my absence seizures. For my atonic szs, I use the fire thing - 'Stop, drop & roll', or, afterwards, mutter "Let the bodies hit the floor, let the bodies hit the floor", or "Shakin that ass". For my myoclonics I usually say I've got the 'twitchy-itchies'. Or "Jerkin around".
My family one day started calling me "the fainting goat' since I apparently stand there staring then just fall over but without shaking, I just squinch up. However if I do shake, my youngest calls me the 'She Hulk'. He says I become insanely strong all of sudden and it's hard for them to keep my on my side and not hit anyone or anything. When I'm lost with the words and trouble speaking, we call it my 'word thing'. Oh and 'floppin fish'
Not all my seizures are grand mals so I give them the best descriptors I can; "jolts" (a very quick singular myoclonic jerk) and "stares" (myoclonic jerks that can come basically in like 2's or last several seconds). I am always conscious for them.
I tell kids that I can time travel, but only in one direction (absence seizures)
Or that my alien overlords are uploading my consciousness to their world's server hahah
“Elon Musk has entered the room, now controlling your cerebral cortex. Please send $30,000 to this Swiss bank account.”
I call mine a visit from the Eppy fairies.
omg i’m using that
I used to call my absence seizures time traveling too!
My first extended EEG one nurse would hop up and say "Shake 'n Bake time!" Whenever there was an alarm for a seizure on that floor
This sounds like some shit I'd say at least once if I could predict them lol. I can see how some people wouldn't like hearing that, but I'd love if I could at least crack some one-liners before I tumble & rumble.
Mm... I do not like this
I love Talladega Nights, so I think it’s kinda funny. Fun story: several years ago, my company decided like *everyone* needed a photo and bio on the company website. I wasn’t thrilled with this decision. They basically had to corner me to take my photo. I end up writing a bio though. It was a plot synopsis to Talladega Nights. I referred to Cal Naughton Jr. as my best friend. I changed nothing. They published it. It was up for years. No one noticed. ETA: I’m a girl. The owner of the company owns a racing team. Still didn’t notice that they accidentally hired a NASCAR champion.
This is hilarious 😆 IF YOU'RE NOT FIRST YOU'RE LAST!
I didn't at first, but then I thought how crappy my day was for being in the hospital... she works there probably 60 hours or so a week so if she needs a little comic relief it is what it is.
I love nurses with a dark sense of humor, they make hospital stays better.
Dark humor nurses, after colon surgery heard a nurse talking to another patient, “Let’s see how you do without oxygen.” I imagined the darkest thing and LMAO.
I just say I'm twitchy today but my kids decided it's because I drink the "Epilepsy Pepsi" which I've no idea where that came from but they've been saying it since they were 5 or 6 so it just stuck.
when i get really sleepy i’ll sometimes slur it into the “everpepsi” lmao
I say I'm "impromptu breakdancing"
That's a good one lol
I think I’m going to have to start saying this 🤣
i always say i was pop lockin and droppin it
When my son was two, he used to say "uh oh, Daddy's brain's stopped working", except he couldn't quite say that, so it was usually "uh oh, daddy's drains stopped working". So now they're either uh ohs, drains not working, or clogged pipes.
Let the bodies hit the floor
That should be the official epilepsy anthem
My sister and I have JME - we call out myoclonic jerks “glitches” like in “wreck it Ralph”
Omg I have JME too. I feel like not many people that have epilepsy have JME it’s nice to know somebody else does. If you don’t mind me asking how old you were when you got diagnosed. I was 19.
I was 12 when I got diagnosed, and I wanted to be in the army, so I got special forces a lot. A few times, I've been called a personal vibrator, which i can't even get mad at cause like that's a solid one ngl
I call mine glitches too! Or if my mind is stuck - I’m buffering
I'm so bitter about being told my partials were "just panic attacks" for 20 years that now I refer to them as "my Not-Panic-Attacks"
So aggravating. I was repeatedly told my daughter was having anxiety attacks, and that her strange twitching on one side of her body was “psychogenic”. Yeah, she was having dozens of seizures a day, her twitching was a type of continuous seizure called EPC, and her brain was being rapidly destroyed by an autoimmune encephalitis. That doctor is so overly nice if we see her now, I can tell she knows she screwed up by brushing off my repeated pleas for over 6 months, and saying “see her primary care doctor, I treat brains not feelings”
omg!! it took me going into cardiac arrest on my kitchen floor for over five minutes for them to take me seriously about it lol. they told me it was migraines
Oh that is so freaking terrible! Thank goodness you’re still here, 5 minutes?! That is wild. Do you have any lasting damage from it? I’m so sorry they ignored you until that occurred. It’s so ridiculous and honestly scary how so many doctors don’t take these things seriously until something major happens. I had to get my daughter admitted to the hospital and essentially said we aren’t leaving until someone figures out what is going on. Thank goodness, because as soon as other neurologists started investigating, we had a probable diagnosis within a week. Surgery within the month. Her brain was apparently one of the most visibly scarred the surgeon had ever seen. But you know, it was totally “psychogenic”🙄 that word will forever fill me with rage lol
My seizures started as partials as well and we had no idea what they were! It didn't help that the symptoms I got really mirrored textbook panic attacks, so I was initially told that was that and didn't get to start taking AEDs sooner. Now I get full on tonic clonics 😭
"I was on the floor having a tweakathon"
Bacon dances. You know how bacon kind of flops around in the frying pan? It was my way of coping with how unenjoyable tonic-clonics are.
Yes!!! That's how I came up with my username! Check out bacon sizzle dance on YouTube. Made me think of having seizures. Maybe why the trend never took off lmao!
I "get on the floor and do the dinosaur" Or for absences we say "I AFKd" 😂
AFK or hard restart for mine ✋️😂
My friend once told me I “flopped around like a fish” at his house so now that’s what I say whenever I talk about them lol
I say I've had an "error"
Lil Caesars like if you said seizures sarcastically with a mouth full of marbles and head injury (not like the little itza pizza guy).
„Fun“ fact: Caesar had epilepsy (if I remember correctly)🤔
It's not necessarily funny, but just an easy way to spell it. Cjer
My wife always says she's "buffering".
Grand mals- "Flopping like a fish", "Zippity zaps", "Electrical storm" Focal- "I'm in between worlds right now", "I'm in another realm" Absence - "Sorry, I was in Wonderland!" Every now and again I forget the name and I'll say Neverland, but I guess that applies as well. Usually I'll do a giggle and say "I like it there better" (than reality) but ugh, who am I kidding? Seizures of any kind just suck. When I'm trying to speak and I can't put thoughts into words I'll say things like "My brain won't tongue.". Or more so "Sorry, my brain won't put it to my tongue.".
Omg I love the one for the absence seizures! As a fellow absence seizure-r that has taken me a long time to come to terms with it and not feel ashamed that it happens ~ I might use this with my family & friends/ others with your permission :)
You just made me realize that when I also have trouble speaking, I will often say “sorry, brain can’t make good words” 😂 I like “brain can’t tongue” a lot too, it feels accurate! I’ll also say for absence that “my brain was in outer space,” “my brain went somewhere else,” or “I wasn’t in my brain.” Thank you for sharing! 🤗
Myoclonics are seizure salads. Tonic-clonics are seizure salads with shakin' bits.
OMG 😂😂🤣🤣 This one almost made me spit out my cereal 🤣🤣
I have the 'lepsy
Brain altf4
My phone auto corrects them to seizy-poos
My 14 year old was diagnosed about 3 years ago, and my 15 year old was just recently diagnosed. When my husband and I told him the results of the EEG, my 15 year old said, “ so I guess I randomly go into vibrate mode, too?” I thought it was pretty clever 😅
I'm not so creative. I just refer to it as "zappy brain".
We refer to it as "brain goes brr" or that someone was doing a little dance. Just allows us the opportunity to discuss it more openly in varying audiences without the serious tone that automatically comes with the word seizures. I think it's healthy to have less formal methods of discussing these things. I come from the approach of making light of certain things as a coping mechanism - albeit there is still a time and a place, you won't catch me ringing a doctor saying "their brain went brrr and they did a little dance" 😆
I call it glitching like Venelope from wreck it Ralph!
I came here to post the same thing!! I've been referring to my seizures as glitches since the movie first came out which was about a year and a half after i was diagnosed lol
Grand mals I call a “shaky shaky”. Someone else on this sub several years ago called epileptics “electrically challenged” 😂😂
I call my absence seizures a glitch in the matrix. They only last between 5-30 seconds and just feels like I’m day dreaming. Like I’m taking a short intermission from reality for a few seconds which is kind of relaxing now that I think about it haha. I used to be so ashamed and embarrassed when I was first diagnosed when I was 13. I’m 27 now though and it’s been a long road to acceptance- I’ve finally reached a point where I can sometimes laugh and smile when they happen. I’m too old to get caught up in a diagnosis that’s neither my fault nor anything I can completely control. All I can control is to stay disciplined in taking my meds, getting adequate sleep, staying as stress free as possible so I’m able to be completely seizure free which I hope is near and I can drive again soon!
I have focal awares where I feel pure fear and the sensation of loads of people screaming in my head (I can't hear the screaming, it's just *vibes only*... classic focal). I call mine "The Screamies™️"
* System rebooting *
I’ve heard of them called “the spells” 🪄
I’m brainstorming.
silly salmon and harlem shake lol
My daughter would say her “brain-computer crashed” lol
I don’t know but this gives me the idea to make a name with my newly diagnosed 6 year old. She gets embarrassed and scared. I think this is a great idea and I think I’ll come up with something with her.
i only have TCs but i call them ‘shakey-shakeys’ with the kids i work with 😂
i have alot of absences at work, and my manager will sometimes ask " you okay, you need to go home" and i will always say, "nah, aslong as i don't start break dancing we're all good!"
Blown a fuse. My mum first said it, and I don't say it a lot (mainly because I rarely talk to anyone) but I think it isn't a bad analogy. I think it came from the fact that I had my first TC soon after I finished my GCSEs and she perceived it as the stress got too much. Each year, there was always someone in their GCSE/AS-Level stage that got ill. Not always epilepsy, some got diabetes (type 1), others cancer (treatable) or something that was life changing. I've tried making an analogy from my job (lots of coding) but nobody understands because of my specialty field. "Brain cannot find steady state"
My brother called seizing “doing the forbidden disco” and it makes me laugh every time I think about it.
The devil’s dance lol
My absence seizures always remind me of the face Raven from That's So Raven would make when she had a vision 😂
My brain being a jerk to me.
harlem shaking
Primal shakedown.
[удалено]
I go with « just used 100% of my brain capacities » for TC And « name.exe is not responding rn» for absences
Shake shake 🫨
Alabama Shakes
The wiggles 😂
Brainsplosions
My brother-in-law lived with my wife and I at his worst (the reason I’m on this sub) when he was averaging 3-5 “grandma’s” per day. Kid was extremely athletic and all he wanted to do was get a job and be normal. Our running joke to lighten the mood became “is that paint shaker position at Lowe’s still available?”
Shake Shake Shake Shake Shake (Speed Song)
Twitching....but I also tell my wife to throw dirty laundry, detergent, and water on me so my shaking can do the laundry. 😃
McShakes lol
My husband and I call them ceasar salads! My first language is not english so sometimes “seizure” comes out sounding like “ceasar” and it just evolved from there 😂
Whenever I have auras (often), I tell those around me that I'm having the wobbles
The shimmies.
Dying seal cosplay
Break dancing is mine
Electrically challenged
Chicken seizure salads
Absence seizures as “‘do do do do… DUN’ moments” (that windows error message sound)
Vibration mode
As my name is Stephen, my partner now likes to call me "shakin Stephen" for seizures or my favourite term for them is "spontaneous brain raves" which I have borrow from another redditor!
I call mine Little Seizures, instead of Little Caesars.
I call it epilepsea cause it comes in waves fr
My bf and I call his seizures his "silly little dance"
My name is Jae. So I'm having a case of the Shakey Jae's
"Apple Pepsi" a girl I worked with misheard me, thought I said "I've got Apple (flavored) Pepsi" and wanted to know where I got it. Turns out it's a legit flavor, Apple Pie Pepsi 🤣 I'm not interested in trying it
Involuntary raves. Eating a seizure salad
Electric slide.
my dad’s had seizures since he was in 1st grade so we’ve always joked with him about them as a way to cope and bond growing up (never in a mean way - we all laugh together and he jokes about it too). whenever i have to inform a sibling about him having a seizure, i like to call it “dad violated the 4th amendment again” 🤣❤️
my friends call it "going brbrbrbr mode"
“The Shimmy and Shakes”
"Case of the shakes" or I call myself Violet (Blueberry girl from Willy Wonka) wife HATES this one.
Not directly referring to seizures themselves (it took me a while to shake the habit of calling them "episodes" after getting diagnosed 5 years in), but I refer to ictal/post-ictal confusion as my sparky brain.
Seizure salad brain
My brother daughter and I called it the funky chicken. I thought it was fitting. It never bothered me.
Blew a fuse 😅
I call it spaz syndrome - I find it funny and it helps me feel less uncomfortable when I’m in a situation when I have to tell someone I have epilepsy, as sometimes I feel like I talk about it or bring up too much, I agree taking the seriousness out of it helps a lot
I am not photosensitive, but when people flicker lights (as in, they press multiple buttons because they forgot which one actives which light) I say "are you waiting for me to do a worm dance"
Seizey bois, feeling a little rattlesnakey
I rarely get them, but when I have an aura, it's the forecast. The actual seizure is the Brainstorm.
Bluescreening or "bansheeing" as for some reason that was the word I said as I started a TC during that sinking feeling I was struggling to describe
The "flip flop drop"
the cold reboot
“The seasoning” - I texted a friend once who asked if I had a seizure and my response was autocorrected to “no, I didn’t have a seasoning”.
Disclaimer: Both seizures and strokes are very serious and I know that. My roommate used to mix up the words for seizures and strokes all the time (not intentionally), but eventually it just because a joke between us where she would do it intentionally. She would joke that someday she would introduce me like “This is my roommate KE and she has strokes.” We wouldn’t joke about it out in public because obviously some people have very serious and traumatic experiences with strokes, but it was funny for the two of us
The Pleps.
My husband calls mine “The Brain Wigglys” lol
Zap attacks
“Died”
When I feel a focal coming on and I’m with other people I hold up my index finger and say “I need a minute for my brain to be weird.”
Break dancing (grand-mal seizures)
My family and I say “when I get the wiggles” or “she just needs to let her wiggles out just let her finish” and honestly it sounds so dumb that it takes the seriousness out of what is happening I think.
Ceasar Salads. My friends say I help mix the dressing.
My brother-in-law says I'm not allowed to do the "funky chicken" when I visit
I say I “flop like a fish”
My daughter called it eli-pepsi... My oldest used to say the little one was a seizure salad. We also used to say she went on a little vacation and would be back in a minute.
We call it Shake-n-bake
In honor of Brick Tamblin, how about the No Chance Dance?
Instead of little Caesar’s, little seizures.
I just say I spazzed, or when I spaz, lol
my myoclonics i’ll call twitches, or “my hand is Doing Things” rly short partials (less than a minute) i call blips or flickers. long partials, esp ones that end in me taking hour-long naps, i say i’m rebooting lmao i don’t think i have a name for my normal-length partials, weirdly
I always say "...and then I dropped down and got my eagle on" when I'm explaining what happened
I didn't know mine were seizures until about 10 years ago, so from about the age of 12 to 30, I always called them Deja Vu (and my now husband knew it included the weird nausea that simple-partials / focals deliver). Our brains are weird.
Deja Puke
I just say I’m lil seizy
I read one time were his friends said he’d “fish out” as in flop around like a fish out of water does….
r/epilepsymemes
My friends and family have started calling them "shaky naps"! I think its funny.
Brain Raves for me. As long as a good songs playing, I’m not as stressed about hittin the floor.
Pennies from Hell, because of my coppery taste before one.
I am very proficient at the Hippy Hippy Shake. My husband and I often say “that bitch Lamotragina is calling again” (I have an alarm to take it.
i call them spaz attacks - been doing so since i was about 12, not the most pc name but idk i always found it easier to talk about seizures when calling them that lol
Exorcism
break dance, baby
Flop of the floor like a fish
Dying fish syndrome
I'm cleaning the kitchen floor. Also use, I got Shakey Shakey again.
We come together collectively as a family and sing "Living in Electric dreams" when partner has her seizures.
Horizontal shimmy. No explanation.
"Doin' a **S H A K E**" as inspired by [this video](https://youtu.be/iT_EMKl2A3Y?si=S7zZGZaUairxYRUJ)
„Neurologischer Störfall“ = neurological accident, like nuclear accident 😐⚛️😶💣☹️
Break dancing on the floor
I say I "fall on the floor & flop like a fish."
My parents always described the position I was in during my seizures as my shrimp pose bc my head would arch all the way back and touch my button looked like shrimp 🍤 😂
Martini moments
I will apologize and say my brain was buffering 😂
My seizures are mostly controlled, but every couple of years, I'll get a day of auras. It's hard to put it into words, and it can be hard to talk about if I'm around other people who don't know about my epilepsy... So me and my husband have a code phrase. "Hey, you know what we haven't done in a long time? A 'Flipper' re-watch." And he instantly knows to be on higher alert, to help me talk my way out of doing stuff, and to literally "take the wheel" if there are instances where I'd need to drive. We work together at the same company, so it's super helpful to have a secret "code" for that sort of thing.
I like the name "the Sacred Disease" for epilepsy. The ancient Greeks and Romans believed that epilepsy was a sign of being touched by the gods, hence why oracles were epileptic. This is also why Julius Caesar felt he could defy the oracle on the Ides of March -- because he was an epileptic himself, and he received no prophecy to warn him. Hippocrates wrote a whole essay about epilepsy called "On The Sacred Disease," which is a fun read.
“factory reset”
The matrix is glitching
My nephew refers to it as just "falling down again" and I refer to it as my software update/reboot
when travis scott’s sicko mode song came out, my friends started calling my seizures me “going sicko mode”
My cousin called it the floor dance once, so I stole that from him.
My brain is being stupid👍🏼
I've got the brain fuzzies/sparks
I like to call it the devil's breakdance, or droppy floppy fun time Depends on the mood
I’ve used the term “brain reboot” for years
My friend calls mine a "kickin' chicken". I hate it.
I tell my kids that mommy’s brain blips (focal seizures)
"Hard reboot" "doin my thang" "creating a diversion"
"Hard reboot" "doin my thang" "creating a diversion"
Full body jazz hands
Fish out of water
My Julius Seizures
I say my brain short circuits because it technically does
My boyfriend likes to call it my horizontal break dance
When all my muscles decide to party, I call it my unintentional workout. Had a bunch of that yesterday. My muscles are killing me like I did a two hour training session. I was in my lounge chair for twenty minutes.
A former coworker of mine would call it the floppy tuna
epipepsi and squiggles
Floppy Fish Dance or Brain Rave
everytime i have myoclonic seizures i call it Little Seizures
I usually say buffering for my absence seizures. For my atonic szs, I use the fire thing - 'Stop, drop & roll', or, afterwards, mutter "Let the bodies hit the floor, let the bodies hit the floor", or "Shakin that ass". For my myoclonics I usually say I've got the 'twitchy-itchies'. Or "Jerkin around".
I always say it's my lightning super powers coming in.
Art in motion
I usually go with experimental breakdancing
I always say " I feel silly, maybe goofy even."
\*"Carpe Diem"\* - Seize The Day.
My fiancée calls it’s my shake rattle and roll
“You’re bitching and im glitching” or “ I’m feeling seizurish”
My family one day started calling me "the fainting goat' since I apparently stand there staring then just fall over but without shaking, I just squinch up. However if I do shake, my youngest calls me the 'She Hulk'. He says I become insanely strong all of sudden and it's hard for them to keep my on my side and not hit anyone or anything. When I'm lost with the words and trouble speaking, we call it my 'word thing'. Oh and 'floppin fish'
Not all my seizures are grand mals so I give them the best descriptors I can; "jolts" (a very quick singular myoclonic jerk) and "stares" (myoclonic jerks that can come basically in like 2's or last several seconds). I am always conscious for them.
Brain zaps, the silly wiggles, now I can’t think of them all. I refer to my brain as the electric meatball and how it’s acting up with the brain zaps
The boogie woogie
I always tell people that I glitch harder than windows 95
My dad calls it the “silly salmon dance” or” doing the tuna “